What are you doing today?

[JuiceBox52]

Are those ages or years?
I'm guessing ages but I'm unsure.


So the longest remission was 3 years... I guess any amount of time with a lesser amount of pain is good.

Ages. Correct

 

[JuiceBox52]

Oh didn't see all this the first time strangely... Sorry.

Yah, that doesn't sound good at all. And it spread as well?... Jeez.

Used to be wrist to mid forearm, now fingers tips to shoulder on a good day, right side of my body. Including my face, down to my hip on a bad day. For some people it spreads to even internal organs

 

[Rocky998]

Used to be wrist to mid forearm, now fingers tips to shoulder on a good day, right side of my body. Including my face, down to my hip on a bad day. For some people it spreads to even internal organs

So basically your whole right side of your body is always in constant discomfort or pain? I can't even imagine it really. Someday, I really hope they find a good treatment. And a cure would be best but even just something to help with the pain...

I knew it could spread to organs but what affect can it have on organs if it goes there??

 

[JuiceBox52]

So basically your whole right side of your body is always in constant discomfort or pain? I can't even imagine it really. Someday, I really hope they find a good treatment. And a cure would be best but even just something to help with the pain...

I knew it could spread to organs but what affect can it have on organs if it goes there??

Pretty much, and that’s only the CRPS stuff. It’s not counting the micro muscle tears and the joint degeneration and the gastroparesis and other pains in various places of my body

There is one thing that helps with the pain, unfortunately it’s not available to me right now, they won’t prescribe it.

Can cause lots of things. Digestive issues, pain, kidney failure, etc

 

[Rocky998]

There is one thing that helps with the pain, unfortunately it’s not available to me right now, they won’t prescribe it.

Oh yah... That

 

[Rocky998]

I have the humidifier set up in my room tonight! Woohoo!

 

[Rocky998]

Well... Good news is the humidifier is working very well. Bad news is, the humidifier's green light apparently also works very well... Nice
I turned the lights off and wow. That green light is fairly strong lol

 

[JuiceBox52]

Well... Good news is the humidifier is working very well. Bad news is, the humidifier's green light apparently also works very well... Nice
I turned the lights off and wow. That green light is fairly strong lol

Put duct tape over the light part?

 

[Rocky998]

Put duct tape over the light part?

I'm lazy and already comfortable. I'm just gonna deal with the E.T light until morning

 

[Fishmanic]

Pretty much, and that’s only the CRPS stuff. It’s not counting the micro muscle tears and the joint degeneration and the gastroparesis and other pains in various places of my body

There is one thing that helps with the pain, unfortunately it’s not available to me right now, they won’t prescribe it.

Can cause lots of things. Digestive issues, pain, kidney failure, etc

and with all that, you're still able to paint
ibuprofen right?

 

[Rocky998]

and with all that, you're still able to paint
ibuprofen right?

No. I believe most pain relievers cause bad reactions for her if I'm not mistaken...

 

[TheLavenderBadger]

Oh Juice, I hope your doctors find something that works.

 

[TheLavenderBadger]

I just went to my band's winter concert! And we sounded pretty good!

 

[JuiceBox52]

and with all that, you're still able to paint
ibuprofen right?

Huh?

 

[JuiceBox52]

No. I believe most pain relievers cause bad reactions for her if I'm not mistaken...

Yes I avoid ibuprofen and most painkillers for a variety of reasons