Thought i would use my 2000th post to wish all a happy holiday season. i would like to thank all the members of this forum, for the enjoyment and information that i have received.
Ahh now the request:
some members will know, but i have a wonderful daughter, by the name of Morgen. at birth she was diagnosed as CDLS/Cornelia DeLang syndrome. [URL="http
/www.cdls.org.uk/"]http/www.cdls.org.uk/[/URL]
she is six now and the light of my life. could i request anyone who is thinking of making any charity donation, this season to make a small donation to the CDLS Foundation via [URL="http/www.justgiving.com/cdls"]http/www.justgiving.com/cdls[/URL]. in the UK there are less than 700 diagnosed cases of this syndrome, and only 3000 or so in the US. as such it is a low priority for any commercial or government funding, so any amount, however small will make a great difference.
I hope this next year gives, everyone what they wish, and takes away little that they cherish!
all the best from: BoB, Helen, Charmaine and Morgen
though some may like to see her http/uk.youtube.com/watch?v=PtLvhsAZois
Ahh now the request:
some members will know, but i have a wonderful daughter, by the name of Morgen. at birth she was diagnosed as CDLS/Cornelia DeLang syndrome. [URL="http
/www.cdls.org.uk/"]http/www.cdls.org.uk/[/URL]she is six now and the light of my life. could i request anyone who is thinking of making any charity donation, this season to make a small donation to the CDLS Foundation via [URL="http
/www.justgiving.com/cdls"]http/www.justgiving.com/cdls[/URL]. in the UK there are less than 700 diagnosed cases of this syndrome, and only 3000 or so in the US. as such it is a low priority for any commercial or government funding, so any amount, however small will make a great difference.I hope this next year gives, everyone what they wish, and takes away little that they cherish!
all the best from: BoB, Helen, Charmaine and Morgen
though some may like to see her http
/uk.youtube.com/watch?v=PtLvhsAZois
